Our son Jayden has severe choreoathetoid cerebral palsy. This type of cerebral palsy causes unpredictable involuntary changes in muscle tone which manifest to observers as constant movement. The diagnosis devastated us at first, and we went through some dark times.
It took some time to find resources. I felt like I was pulling teeth every single time. Hours spent on the phone either to ask questions, follow up with something, or on hold to get a live person to talk to. Dealing with insurance is always been a nightmare. Have you ever dealt with private insurance only to get a non-coverage/denial letter? It’s sickening how every time I need documents I will get transferred to a different department and have to repeat myself.