One Family’s Discovers Help And Support In The Cerebral Palsy Community
Yu-Chen Hsueh is CCPM’s newest board member, joining us in April 2018. Yu-Chen wrote about his families struggles and triumphs with their son Jayden recently, and he wanted to continue their story, particularly how Orange County and CCPM have changed their lives...
One Family’s Desperate Search For Help In The Cerebral Palsy Community
Our son Jayden has severe choreoathetoid cerebral palsy. This type of cerebral palsy causes unpredictable involuntary changes in muscle tone which manifest to observers as constant movement. The diagnosis devastated us at first, and we went through some dark times.
Community Spotlight: The Hsueh Family Difficult Journey To Better Care For Their Son
It took some time to find resources. I felt like I was pulling teeth every single time. Hours spent on the phone either to ask questions, follow up with something, or on hold to get a live person to talk to. Dealing with insurance is always been a nightmare. Have you ever dealt with private insurance only to get a non-coverage/denial letter? It’s sickening how every time I need documents I will get transferred to a different department and have to repeat myself.
How A Single Runner Inspired Him To Make A Difference
On June 9th of 2017 I received an email from a friend of my husband who had fallen in love with Maddie’s charmingly whimsical Kitty Cool cards. He had purchased some and wanted to reach out to me and relate a story about a man with Cerebral Palsy that he thought might...