Our son Jayden has severe choreoathetoid cerebral palsy. This type of cerebral palsy causes unpredictable involuntary changes in muscle tone which manifest to observers as constant movement. The diagnosis devastated us at first, and we went through some dark times.
Cerebral Palsy doesn’t discriminate. It impacts every demographic in America; one out of every 323 live births. I should know because my daughter, Maddie, was one of those children
It took some time to find resources. I felt like I was pulling teeth every single time. Hours spent on the phone either to ask questions, follow up with something, or on hold to get a live person to talk to. Dealing with insurance is always been a nightmare. Have you ever dealt with private insurance only to get a non-coverage/denial letter? It’s sickening how every time I need documents I will get transferred to a different department and have to repeat myself.
CCPM founder Debbie Fragner joined host Richard Franzi on the Critical Mass Radio Show to discuss CCPM and our upcoming Cerebral Palsy Kids Walk/Run!
Matt Soto is the head coach for the Capo Valley Boys Cross Country team. His team will be attending the OSO Fit Community Health Fair & 5K Fun Run as running buddies for kids that need a little extra help crossing the finish line. Coach Soto sat down to let us know how he and his students became involved with Children’s Cerebral Palsy Movement, and why the cause is so important to him.