The majority of people with Cerebral Palsy spend their lives being judged by their diagnosis. They are seen as their diagnosis, and viewed far too often, as being unable to accomplish great things. When caregivers unwittingly believe this lie, they stay locked in their place of trauma and hopelessness and don’t make the effort to dream big dreams for their children, and then set about making them come true.
School is one of the most important pieces of your child’s life, and not just because of the education. Making friends, socializing, taking part in extracurricular activities, and learning how to navigate life with some autonomy are all vital aspects to going to school. However, when your child has Cerebral Palsy, they will likely have a very different experience.
Our son Jayden has severe choreoathetoid cerebral palsy. This type of cerebral palsy causes unpredictable involuntary changes in muscle tone which manifest to observers as constant movement. The diagnosis devastated us at first, and we went through some dark times.
Cerebral Palsy doesn’t discriminate. It impacts every demographic in America; one out of every 323 live births. I should know because my daughter, Maddie, was one of those children
It took some time to find resources. I felt like I was pulling teeth every single time. Hours spent on the phone either to ask questions, follow up with something, or on hold to get a live person to talk to. Dealing with insurance is always been a nightmare. Have you ever dealt with private insurance only to get a non-coverage/denial letter? It’s sickening how every time I need documents I will get transferred to a different department and have to repeat myself.